I said at the end of last week’s blog that I was going to talk about the apps I currently use to manage my FND and I will, but first I should mention that I’m at Valerie’s for the weekend. Val’s daughter Stacey and son-in-law, Llewelyn, stayed here over the summer, while Stacey was having a baby. They went home a week and a half ago and, to my great joy last Sunday, Val invited me and Triar up for the weekend. It couldn’t have been more perfect for me. I’ve a few things booked in early October, so weekends are limited and I wasn’t expecting to come here so soon. But yesterday evening was spent on a sunset walk around Airth, listening to the amazing sound of the geese that are gathering in the fields, followed by gluhwein in the hot tub. As Valerie said, “Let Autumn begin.”
As regulars will know, I was recently diagnosed with Functional Neurological Disorder, or FND. While the diagnosis was recent, I’ve been having neurological oddities going on in my body for years. My life and job in Arctic Norway was sometimes physically tough, but for three years I was able to manage my symptoms. They occasionally came back, but then I would rest until they went away again.
The physical and mental stresses I’ve had since returning to the UK had destabilised the situation and I went through a period in the spring and summer of this year, when the symptoms had returned on what seemed like a semi-permanent basis. They weren’t awful. Some tics and body jerks, days of waking up exhausted and odd sensations, mostly like insects crawling on my feet, though the feeling of a knitting needle jabbing into the top of my right foot was sometimes quite unpleasant.
While getting enough rest is crucial, there are other things I’ve been doing which seem to help and they mostly revolve around apps on my phone. Sometimes I think constant access to the internet and to smart phones has brought some very negative things into the world, but there are some real positives as well. I try to ensure I get enough sleep, for example, and though partly that’s about putting down all my devices as bedtime approaches, I do monitor how much sleep I get, and the quality of that sleep in the Autosleep app, which is linked to my Apple watch. While it doesn’t directly help me sleep, it does remind me that I feel much better when I do sleep well and helps me monitor what works to get there.
As well as Autosleep, I have been using WalkFit. I’m not sure I would recommend it. It’s quite expensive for something that’s not quite as good as it should be, or at least that’s my opinion. It got me on board with false advertising, telling me I’d lose weight quickly, but then not giving me explicit guidance on how to do that. To be fair, I knew before I started that rapid weight loss from a walking app was unlikely, but it did tempt me in. Then the first three months cost £25 and I assumed that would be the ongoing price.
After the first three months was up, they charged me £66 for the next quarter, but by then, I was well into the program. I may not have lost much weight, but I am regularly doing a whole lot more exercise because of it, so while that is working, I shall continue. It suits me quite well as, on the mid-level activity program, the daily target is 7,500 steps. You can have two days off in any week without losing your streak. I’m now on 139 days and I don’t want to lose it. There’s also a set of exercises you can do inside, if you are struggling to get steps on wet days. I would do more of those if they were 20 minutes long. They used to be, but now they’re nearer half an hour and the music is a bit tedious. As I said before, I wouldn’t entirely recommend it. It would be better if there was more flexibility to choose the length of your exercise session, but for now, I’m sticking with it.
The final App I’ve been using is Headspace, which I get through work. I used to have Calm, which had some lovely Sleep Stories, which tended to send me off in minutes, but as work were offering to pay, I changed over to Headspace instead. What I hadn’t expected (and which now, has unfortunately changed, it set me up a day’s itinerary, with tasks that it ticked off as I did them. The day started of with five deep breaths, moved onto a two to five minute chat on how to handle the things life brings, then a ten minute meditation session. There was a very variable afternoon task, that was sometimes physical exercise, sometimes music and sometimes a short wildlife film, the to end the day, it recommended a sleep story, which it calls a sleepcast. I’d added in a mindful eating course, which it added on and marked off when done with the rest.
I’m glad I joined up while that itinerary was in place as it’s now changed. Those things are still there, but in a much busier screen with “Recents” at the top, then some of those previous “Daily Essentials” as a line underneath you have to scroll along. Some are missing though, so I’m now using it less, ironically. Pretty sure that wasn’t their aim. My mindful eating course is now in another line called, “Picked with you in mind.” Well you didn’t pick it, did you? I picked it! Anyway, I digress. I’m still using the app, but it’s now much more difficult for me to track whether I’ve done each element over the course of a day.
It’s taken me some time to find sleepcasts that I like. There are certainly plenty to choose from. The Calm ones that I liked best told a story, where you walked alone up a mountain, or along a beach, then lay down somewhere and did some meditative activities. The Headspace sleepcasts paint pictures, sometimes of quite busy places. Maybe some people find those helpful but I don’t. I have found some though, that describe scenes where you find a comfortable place and I am using those more often. Now and then, I try a new one and last week, I tried one called Arctic Lights.
I was looking forward to a scene, with the aurora overhead, and that was in there, but I must confess, most of the rest, I found unrelaxing for all the wrong reasons! There was something about a breeze and snow on the ground and the sounds of a waterfall in the distance and that had me bristling. I mean, I guess it’s possible, but in the Arctic where I was, all the streams and waterfalls froze quite early in the winter and often before the snow came. There were sometimes wind, but most of my memories of aurora were on utterly still nights, where the sky was clear and there was an ethereal silence as everything was solid ice. So instead of the lovely relaxing experience I’d hoped for, I was lying there in bed going, “Well! That’s not right!”
The last straw was when some deer passed by and went to drink by a lovely lake. Why deer, I thought, my mind in glorious outrage. I never once saw deer up there, other than reindeer and far more often, there were moose! I mean there were deer there! I inspected a carcase once that a hunter had shot, but only one in three years. Of course, if I hadn’t had all those ore-expectations, I probably would have found it lovely. Instead, I grumpily sat up and selected a different one. Ah well, I’ll just have to write my own Arctic stories instead!
Anyway, Valerie is now up and it’s time for me to go down and join her, so I’ll leave you there. Hope you have a good week and thanks for reading!
A Vet’s Life 